News release

Date: 16th September 2015

First global Usher Syndrome awareness day - 19th September

Molly Watt, a young woman affected by the rare condition Usher Syndrome, talks through some of the issues she faces, to promote first global Awareness Day.

London, UK, 16th September 2015 – Usher Syndrome is a rare genetic or inherited progressive condition that affects hearing, vision and balance. It was discovered by Scottish Ophthalmologist Charles Usher in 1914. To date there is no cure.

Many of those affected use hearing aids or cochlear implants to access sound and are able to communicate with speech. Some use sign language.

Molly Watt is 20 years old and lives in Berkshire - she was diagnosed with Usher Syndrome at 12 years old. She is a charity worker and is looking to be a self-employed motivational speaker. She was born hearing impaired and has been wearing hearings aids since she was 18 months old.

The onset of blindness and her hearing impairment has impacted Molly’s life in profound ways: “I had to quickly find strategies to get about without hurting myself. I would often walk into doorframes, and have bruises all down my arms and legs a lot of the time! I lost self-confidence, and at points did not feel I could ever be fully accepted by somebody. It was incredibly difficult to get a job.”

Molly was recently issued with a pair of new Smart Hearing aids, ReSound LiNX² that she controls using her iPhone and Apple Watch through an app. The app is called ReSound Smart™ and is the first that allows hearing aid wearers to control their instrument from their new Apple Watch. Its available for free from the App Store.

Previously talking on the phone proved very difficult. Not anymore. “It was a real "wow" moment when I made my first call to my Dad, via my Apple Watch and my new smart hearing aids,” comments Molly. “His voice came straight into my ears. He sounded different, so much clearer than before, it dawned on me, I'd never heard my Dad's real voice before. My Mum, ever faithful support and chauffeur, sat beside me sounded totally different. Even I sounded different to myself.”

“With the use of the app I have access to a system that I can alter to suit various environments. In a room full of people who are asking me questions after my talks, I am able to locate where the voices are coming from. It is the first time ever that I have been able to locate sounds. Out and about the advantage of being able to locate noises means I can avoid obstacles when walking around my home town with my guide dog.”

“And when out with friends, I can use the app to alter background noise so I can focus on the person in front in busy pubs, restaurants and social areas.”

Molly likes the sound quality of her new aids: “I have a ‘favourite’ setting on the app that I use most days. This setting has the volume a little higher, the bass higher too and the treble is lower. I have learnt more about my own hearing because of this app. With this setting the quality helps me gain more access to what is happening around me.”

For more information of ReSound hearing aids: www.resound.com

For more information on Usher Syndrome Awareness Day:
www.usher-syndrome.org/our-story/blog/own-the-equinox-usher-syndrome-awareness-day.html

For support and information about Usher Syndrome in the UK:
www.molly-watt-trust.org
www.sense.org.uk/content/usher-syndrome


For further information please contact:
Simon Brookes
simon@boroughpr.co.uk
07740 428 952

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